Friday, October 9, 2020

I'm Back!

So what the heck happened to me?

On September 3, I went to the local ER because I was feeling very unwell -- nausea, severe muscle weakness (including difficulty swallowing solid food), dehydration, etc. That afternoon, the hospital's routine work-up revealed an alarmingly high level of troponin in my blood, which most commonly indicates a heart attack or heart injury. Promptly, I was admitted to the ICU for 24 hours so that my cardiac function could be monitored more closely.

Over the next two weeks, I stayed in a general cardiac ward where I underwent two echoes and a cath (in addition to a bunch of other diagnostic scans and blood tests). These all revealed that my blood vessels were squeaky clean and my heart was pumping normally. At this point, the aforementioned local institution was stumped, so they transferred me to a larger teaching hospital where I could be seen by specialists in cardiology and rheumatology.

After a completely normal cardiac MRI at the new hospital, a primary heart problem was ruled out, and the focus turned to an autoimmune cause for my weakness and other signs/symptoms. Several tissue biopsies were conducted, and a feeding tube was inserted so I can still get nutrition while my throat muscles remain inflamed and weak. The results of the biopsies are still being reviewed by the big-time specialists at Johns Hopkins, but the suspicion at this point is that I have a mixed connective tissue disease. I am showing classic signs of dermatomyositis (an autoimmune disease of the skin and muscles), CREST Syndrome, and - of course - the rheumatoid arthritis I already knew I had.

I am now home from the hospital on high dose immunosuppressive medication. Over the next month of follow-up appointments, we're going to work on finding exactly the right combination of medical therapies that will - hopefully - restore function and allow me to, once again, lead my normal life.

TL; DR: My body essentially collapsed for reasons unknown, and I am still trying to bounce back.

As you might expect, a month spent in the hospital with limited internet and TV gave me an opportunity to get some reading done, so in next week's post, you're probably going to see some book reviews. But first, I just wanted to let you know the reason for my unplanned absence. Any prayers/well wishes as I continue my treatment regimen are, of course, greatly appreciated.

2 comments:

  1. I'm glad you're out of the hospital. I hope the recovery goes smoothly, and I look forward to the book reviews.

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  2. What are your liver results like? i found I could get the dermatomyositis under control with a daily dose of N-Acetyl-cysteine

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